LUCA BEAR MADE A WISH

February 15, 2019

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Rooomy Mag

Make-A-Wish goes above and beyond to grant amazing wishes to very amazing children; their One True Wish made a reality at a time when they need it most. Because a child's life shouldn't be about illness, hospitals and diagnosis - it should be about wonder, joy and hope.

Luca’s story

Luca is four years old. He lives with his parents and older brother in Birmingham. Luca was diagnosed with CHARGE syndrome when he was born, a complex illness. He is deafblind, has heart and hormonal problems and a weakened immune system, among other symptoms.

Mum, Faye, says:

“It’s been a hard journey so far, at some points we didn’t think Luca would make it. He has many hospital admissions and has had 16 operations so far, including open heart surgery, and there will be more to come as Luca grows up.

We worried he’d struggle to connect with us, being deafblind, but he knows we are his family, he definitely responds to lights and colours and he is such a happy child. We manage his treatment and medication at home mostly – checking his sats and giving him nebulisers. I never thought he would progress as much as he has, it’s incredible and he makes me so proud. He is my little superhero, my little miracle.

Loud noises can distress Luca, so having a bedroom where he feels safe and relaxed is important, that’s why we chose a bedroom makeover for Luca’s wish. His special bed is his safe place, and I often read to him there. ‘We’re Going on a Bear Hunt’ is one story that Luca has really responded to. It’s a story of adventure and perseverance and overcoming obstacles. A story Luca can grow up with, that’s why we call him Luca Bear”

Tim of Haus London is a wonderful designer who is donating his time to designing this room for Lua. Walker Books have offered some great goodies for the room which will be a great treat for Luca.

One of the main items in the design is a wall mounted lightbox which is being made for Luca. We want to try and raise the £80 to cover the cost of this to support Luca, his family and Make A Wish. You can help us by donating just £2 here, they'll all add up very quickly.